Outcomes That Matter : Dementia
We are currently in the process to review the outcomes that are being monitored in Sweden regarding Dementia, complemented with international research to understand what the relevant outcomes are to understand the performance in healthcare. Read more about Outcomes That Matter here to understand the context.
Here are some important publications / reports on the topic:
McKeown, Alex, Andrew Turner, Zuzanna Angehrn, Dianne Gove, Amanda Ly, Clementine Nordon, Mia Nelson, et al. ‘Health Outcome Prioritization In Alzheimer’s Disease: Understanding The Ethical Landscape’. Journal of Alzheimer’s Disease Preprint, no. Preprint (1 January 2020): 1–15. https://doi.org/10.3233/JAD-191300.
Tochel, Claire, Michael Smith, Helen Baldwin, Anders Gustavsson, Amanda Ly, Christin Bexelius, Mia Nelson, et al. ‘What Outcomes Are Important to Patients with Mild Cognitive Impairment or Alzheimer’s Disease, Their Caregivers, and Health-Care Professionals? A Systematic Review’. Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring 11, no. 1 (1 December 2019): 231–47. https://doi.org/10.1016/j.dadm.2018.12.003.
Ly, Amanda, Claire Tochel, Annette Bauer, Anders Gustavsson, Cathie Sudlow, and Christin Bexelius. ‘COMBINED REPORT D2.3 Stakeholder Generated Lists of Priority RWE Relevant Outcomes and D2.4 Disease Progression and Outcomes Classification Matrix’, 2018, 214.
These are pictures from a draft presentation on the topic.